Young Onset Dementia: Awareness, Care, and Support for Caregivers

In this episode of the Able to Care podcast, hosts Andy Baker and Nadine welcome back Sarah Merriman, an expert in the charity sector and a caregiver with extensive experience working for the Alzheimer's Society and tide. Sarah shares her personal journey as an unpaid caregiver and her deep passion for raising awareness about young onset dementia. The conversation delves into the unique challenges faced by individuals diagnosed with dementia before the age of 65, the importance of early diagnosis, and the need for age-appropriate support services. Join us as we explore the intricacies of young onset dementia and the critical need for tailored care and awareness.

Resources:

Tide- Together In Dementia Everyday: https://www.tide.uk.net/

Young Dementia Network: https://youngdementianetwork.org/

Dementia Forward:

https://www.dementiaforward.org.uk/about-our-services/young-onset-dementia/

Lewy Body Society:

https://www.lewybody.org/

Rare Dementia Support:

https://www.raredementiasupport.org/

Key Timestamps:

[00:00:00] - Introduction

[00:00:47] - Sarah Merriman discusses her experience as an unpaid caregiver and her work with Alzheimer's Society and Tide.

[00:02:24] - Sarah describes the impact of early diagnosis and the importance of age-appropriate care.

[00:07:57] - Discussion on the increase in young onset dementia diagnoses.

[00:13:01] - The challenges of age-appropriate services and support for young onset dementia.

[00:14:44] - Efforts by organisations like Young Dementia Network to raise awareness.

[00:16:19] - The unique challenges of frontotemporal dementia and behavioural changes.

[00:27:32] - Importance of early diagnosis and proactive approach to dementia care.

Key Messages:

Importance of Early Diagnosis: Early diagnosis of young onset dementia is crucial for accessing appropriate support, resources, and treatments that can improve the quality of life for individuals

Challenges of Age-Appropriate Care: Individuals with young onset dementia face unique challenges, including a lack of age-appropriate services and support. Tailored care and resources are essential to address their specific needs

Raising Awareness and Reducing Stigma: By sharing experiences and knowledge, organisations and individuals can help reduce the stigma associated with dementia, ensuring that those affected receive the support and recognition they need.

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